Alabama NEIDs Solutions is a PANDORA Org project to promote establishing a clinical care and / or research center in Alabama for neuro-endocrine-immune diseases.
According to prevalence studies, an estimated 20,000 Alabamians suffer from ME/CFS (1 in 240) and 144,000 Alabamians suffer from fibromyalgia (1 in 50).
Yet, these patients struggle to find knowledgeable healthcare in this state, sometimes having to travel out of state at great financial costs, right when they are losing their ability to work.
We hope to change that.
If you live in Alabama and have or think you have a neuro-endocrine-immune disease, you have come to the right place. Neuro-endocrine-immune diseases include myalgic encephalomyelitis / chronic fatigue syndrome, fibromyalgia, chronic tick-borne infections, multiple chemical sensitivities and Gulf War illnesses. They are sometimes called "chronic multi-system illnesses."
This is a clearing house for information, support and collaborative efforts to improve knowledgeable healthcare access for these patients in Alabama. We hope this website will provide a means for the patients to connect with each other and bring more visibility to these diseases and their impact on Alabama residents.
According to a 2012 patient survey, 40 percent of Alabama NEIDs patients searched for an accurate diagnosis 2-7 years before receiving one. Also, 21 percent searched for an accurate diagnosis for over 7 years before receiving one.
By connecting patients with each other, promoting physician education and promoting the creation of an NEI Center, PANDORA Org hopes to change those statistics.
We have made some progress, but much more needs to be done. We hope you find helpful information here, and we hope you will join us as we work to improve the quality of life of neuro-endocrine-immune disease patients in Birmingham, Tuscaloosa, Huntsville, Montgomery, Anniston - the whole state of Alabama.
Please help us by donating toward creating an NEI Center and educating medical professionals about NEIDs.
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